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Wednesday, June 21st, 2006
11:45 pm - this is me Im the human

LOL http://img.photobucket.com/albums/v290/MeowerZ/387800.jpg

No Im no Paris Hilton but I am a person. I came here thinking Id fit in. Im ugly but hey so what I am not cookie cutter carbon copy of everone else/

I hope Im welcome.

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Thursday, June 8th, 2006
9:21 am
sororitytears Hey, I'm new!  :) Intro below the cut, it's long.

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Wednesday, May 10th, 2006
10:48 pm - Hello

I'm not sure if this is allowed...

I am 19 years old and have struggled with self-image for as long as I can remember. I think in large part it may be due to a learning disability that went undiagnosed until I was 16, too late for any kind of real intervention. I know I have no reason to feel bad about myself-I have overcome my disability as best I can, I am in the Honors program at school and I have a healthy list of accomplishments. Yet I still feel like I can't accomplish the simplest task. I spend so much of my time feeling like a failure and last year had a full-blown anxiety attack for the first time since I was 12. I have semi-frequent (though not as frequent as they used to be) crying jags and I often just feel down on myself.

Recently I decided I was finally going to improve this, but when I do that I just feel worse, like I don't deserve to improve my self-image. I know this isn't good for me and it will eventually hurt me and I don't want that, but I don't know what to do! Does anyone have advice?

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Sunday, April 23rd, 2006
3:12 am - Newbie

Hmmmm... where to start... lol

My name is Nat and I'm a 22 year old single mommy of a beautiful little boy.

I have a ton of health problems. So many, in fact, that it's impossible to list them all, but here are just a few; KTW syndrome, arm amputee, vascular malformation, diabetes, deformed spine, OCD, anxiety, depression, hypothyroidism, CFS, fibromyalgia etc.

Just hoping to meet people who are going through similar situations and perhaps make some new friends :)
If you want to know anything else, please feel free to ask!

current mood: busy

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Thursday, December 15th, 2005
1:06 am - Newbie intro

Hello everyone.

My intro is kinda long so I'll put it behind a cut.

Read more...Collapse )

current mood: tired

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Monday, December 13th, 2004
2:53 pm - new here

Hi, my name is Tracey. I just found this LJ community. I will be 29 years old on January 2, and I was born with Spina Bifida, Hydrocephalus and Arnold Chiari Malformation. I have used a wheelchair full-time since the age of 5, and really, it's always been the least of my problems. My biggest problem throughout my life has been an undiagnosed Nonverbal Learning Disability, which was finally diagnosed in October 2003. My NLD makes it very difficult for me to pick up on body language, tone of voice, facial expressions, etc. It also affects my fine motor skills and hand-eye coordination (writing is a pain in the patuki), reading comprehension, math and science skills. Needless to say, school has never been easy, academically or socially. I was teased mercilessly from 7th-12th grade. College was/is better, but I've still really only started being successful at making friends in the last two or three years.

I'm going back to college in January after about 4 years off, and although I've already taken Intermediate Algebra, my new school requires all new students to take a Math Placement test, and because of my NLD, I only managed to complete half the test in the allotted time (30 minutes for 30 questions!) so I have to go back to Basic Math Skills. Considering that Stats is a Gen Ed requirement, I have a long way to go.

Aside from my physical and learning disabilities, I struggle with my self- and body-image because of emotional abuse, medical trauma, being raped at age 19 and being forced to fondle my "best friend" when I was 16. My Spina Bifida gives me a different body stature than everyone else in my family. Everyone else in my family is very petite or tall and thin, and I am small (5') and about 20 pounds overweight. My mom has NEVER let me forget that she doesn't like my body. The only time my mother has ever praised me on my body was when I lost 22 pounds in six weeks during a hospitalization (99 pounds to 77 pounds). The doctors were threatening to tube feed me, and my mother said that it was the best I ever looked! I also have the biggest breasts in my family; another thing my mother never lets me forget.

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Tuesday, May 18th, 2004
8:01 pm

Hello there. I am Ali abbas, celebrity amputee.

being a fellow cripple (i have no arms. fact.) i want people to know about me. i lost my arms in the iraq war, and subsequently became a minor celeb in the uk.

i have just shat my burkha. it stinks. of shit. fact.

i just want to be loved.......

add me?

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Wednesday, April 21st, 2004
5:16 pm - Why Is It Still Bugging Me?

Hi I'm new here so here's my story, my name is Navneet, I'm an 18 and in my 1st year of university; I was born with a rare (occurs in 1/15,000 births) congenital overgrowth disorder: Beckwith Weidemann Syndrome. I've had 3 surgeries to correct problems associated with it: one for hernia, another for macroglassia (enlarged tongue), and another to get rid the discrepancy in the length of my legs caused by hemihypertrophy (condition where one side of the body grows faster than the other). While growing up I was bullied a great deal for lisping (caused by the tongue surgery), anamolies in my appearence (caused by the hemihypertrophy), and my behavior of clutching stomach and needing to suddenly run to the bathroom whenever I had a kidney problems (frequent kidney infections were another problem I had linked to the disorder).

Fortunatly by highschool I had pretty much outgrown all the visable symptoms of BWS except the lisping and was still mocked heavilly for the way I speak.

Now in university nobody has commented on my lisp, but for some reason I still believe I'm being judged for it, I also occasionly think that all the visible anamolies I have outgrown are still there and people notice them and are staring. I am so paranoid and I am ashamed of these feelings, I feel weak and stupid because I know it's irrational.
Is this normal?

current mood: aggravated

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Monday, April 19th, 2004
9:49 am

i have just created a new community for people who has Cerebral Palsy or for people who want to learn more about it cp_uk

please join

current mood: excited

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Monday, March 22nd, 2004
8:10 pm

Hey everyone,
Im Vonnie. im 17 and i live in Sydney Australia, i was born with Spina Bifida with an uneven lesion, and i am wheelchair bound. Anyways just stumbled across this community and thought i would say, im outgoing and very social and i dont give a fuck what anyone thinks about me, its what's inside that counts. WOOOHOOOOOOOOOO! i look forward to making some new friends too. Feel free to visit my journal and such too.

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Sunday, January 25th, 2004
4:18 pm

Hey! I dunno why I was surprised to find this community. I never really thought about the fact that there are thousands of other people out there, like me, dealing with the same stuff! kind of a relief...

anywayz! my name is Michelle and I'm 18! i was born with a cleft right lip! (woo!) throughout my entire life....the fact that i was born with a cleft lip has totally been neglected, emotionally, not physically, by my parents. the teasing, the stares, the questions, the doubts, the low self-esteem spouts, all of that has totally been ignored by my parents. so, i was left to deal on my own....but...i guess i didn't handle it well. i guess i locked it up in a safebox and have just now been able to open it. except, i still don't know how to deal with my emotions. my parents tried to make me completely normal and so i had almost forgotten that i did have a cleft lip for a year or two...until i got really active in school and became head chairman of a community service project for a club called FBLA. our community service project was based on helping out the March of Dimes. I was the spokesperson for our club and spread the word about march of dimes around the county. they made me share my story and it was the first time i realized that i wasn't just born with a cleft lip, but with a birth defect. and i dunno, the word DEFECT totally effected me...really really bad. when i screwed up, i would kind of blame it on that..."i'm defective, i'm defective, blah blah blah" and so on. so lame, i know! but who knows why teenage...or human minds for that matter, react the way they do. my mom just said, "get over it, stop feeling sorry for yoruself," which is very true, but...it still doesn't address the fact that i have some serious emotional issues that i need to work out and it doesn't happen by ignoring it or forgetting about it and moving on. that was a year ago. now, i'm a little better. but i still....i dunno, i still don't know how to deal with anything. i really do need to "embrace my inner beauty" because i can't get past the scars and the crookedness and..."the defect" that just sticks out in the mirror. i don't know exactly what i'm seeking by posting this...but i just want to know if other ppl have gone thru the same things..or close to it...and how u are dealing. cuz i surely am not dealing well....

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Sunday, December 21st, 2003
10:01 pm

Hi, I'm new. I found out about a week ago that I have Tourette Syndrome. My brother also has it and it is possible we both got it from my mom and grandpa who both have tics.

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Thursday, October 16th, 2003
11:09 pm

Hello my name is Jara. I just wanted to let everyone know of a new community for persons with congenital heart disease & defects, or parents of children with CHD's. imperfecthearts. Please check it out.

my list of heart defects includes some of the following. ..

Severe Tetralogy of Fallot, Dextrocardia, Situs Inversus Totalus, Transposition of the Great Vessels, VSD, ASD, HLHS, Coarctation of Aorta, Right Bundle Branch Block (RBBB), Pulmonary Atresia, Pulmonary Stenosis, Mitral Valve Prolapse & Insufficiency, Aortic Valve Prolapse & Insufficiency, Mild Tricuspid Insufficiency, Moderate SVC Narrowing, Severe IVC Narrowing, Cardiomegaly, CHF, Decreased Ejection Fraction, Stroke x2, TIA x1, Blalock-Tussig Shunt (1978), Mustard-Rastelli Procedure (1988 Intra-Atrial Baffle + Conduit), Cardiac Tamponade (1988), Cardioversion (1992), Endocarditis x3, Post Anti-Arrhythmic Induced Hepatitis, Post Anti-Arrhythmic Induced Lupus, Multiple Arrhythmias (SVT, Ventricular Tachycardia, Atrial Fib, Atrial Flutter, PAC's, PVC's, Bigeminy, Trigeminy), Long QT Syndrome, Inverted P Waves

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Friday, July 11th, 2003
9:08 am - Sometimes...

Sometimes I get so irritated with people's ignorance, you know who I am talking about...the ones who stare endlessly "tring to figure out what's wrong with you".
Sometimes I feel like wearing a sign that reads: Yes, I have a birthmark. No, it doesn't hurt. It has been a part of me since before I came out of my mother's vagina. Thank you for not staring.

Then I remember that I am a nice person who never causes any trouble.

Sometimes I wish I did, for the sake of education of course :P

current mood: annoyed

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Thursday, July 10th, 2003
1:19 am - im new

Hey im Jenn. My dad calls me fat all the time and its only because of him I dont like who i am anymore. whenever we would go out he would poke my stomach or tell me how many pimples i have and that im breaking out. it started making me really insecure t the point where sometimes i dont go out cause he criticizes me so much. i stopped eatting last week to try and prove a point to him and instead he thinks its good, and he tells me hes proud of me. i have so many great qualities about myself he wont even recongize but that hes proud of, i dont know why its so important for HIM for me to be skinny, shouldnt he care more about me being happy.

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Monday, July 7th, 2003
6:11 am - New Here

Hi everyone! I joined this community because i feel others can relate to my situation(s) and I to theirs, so here goes:

when i was five i was hit by a car going 58 in a 25. I was banged up pretty badly. I had a headinjury, broken leg,hip, and ribs, ruptured uterus, spleen, and a punctured lung. needless to say, i was in pretty bad shape. But by some miracle, I pulled out of it. I was not the way I was before though. I had to take medicines, and phsyical/occupational therapy for 9 years, in the beginning, taking up half a school day.

I was not accepted very well by my classmates, and really honestly, hated going to school. Now I am doing pretty good, but the pain is still there. the pain of feeling like people are going to look at me differently and treat me differently because I have these disabilities. i feel like a complete fool when i am standing somewhere doing nothing, and my leg and balance give out and I fall to the floor.

Am i sounding like a child? I'm sorry if I am. I have accomplished many things in my life, such as graduating high school (they said I wouldnt have the capacity to make it past 6th grade), do some college, get married, and have a baby. Most of those things the doctors said I would never be able to do, but I did them.

What I guess, Im trying to find, is an answer. An answer to why I still feel this way?

current mood: gloomy

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Friday, June 6th, 2003
1:23 pm - Newbie

Hi I'm Melissa I just joined. I have Cerebral Palsy. I have been told by many people that I have self image issues so I am hoping that this community will help me with that. My CP has a major effecct on my legs, besides a trillion surgry scars I also have very little muscle mass in them and my knees turn in... I hate it but after 20 years I am dealing... I just wanted to say hi. Feel free to add me... I likes friends
Later days

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Friday, May 30th, 2003
6:48 pm - Unsure

Sometimes I really worry about my looks getting in the way of my future. I know that most places say that they are equal opportunity employers, but that just may change when they see you, especially in the kinds of work that I have always wanted to get into. Here is a picture of me at Easter, with Nathan, my ever-supportive boyfriend.

When I started college, I thought that I wanted to go into teaching at the elementary level. I love children, and think that I could have a lot to offer them, because I am very child-like, and have a passion for helping children learn. Then I started to have second thoughts.... Even though I had had my first in-class teacher observation, and it went amazingly well, I am always doubting myself. I have always been stared at my whole life, and don't think that I could handle having to explain why I look different to 25 children and their parents year after year. The prospect of having to answer to people for the rest of my professional career just didn't appeal to me. I told my friends and family that it was the responsibility aspect of the job that bothered me, just because I thought that was an easier answer, and I woudn't have to answer to anyone else. Then I thought about what else I could do, and since I love positive interaction with people, I thought about communications, public relations to be specific. Second thoughts began to bloom once again, and I couldn't take it. I am so confused about what my future holds that I decided to take a semester off of school and try to figure out what I want to do with my life. I just wish there was some way for me to be look normal. I mean, I feel normal, until someone starts to stare at me, or I hear the whispers.... I just wish it would end. Blah....

current mood: contemplative

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2:05 am - :\

Pretty dead here, huh?
Gonna make a post later in the day if I get a minute....but that's not the first time I have said that and then forgotten.... :P
Whats up with you guys?

current mood: bored

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Tuesday, April 29th, 2003
5:24 pm - the fat kid

so yeah - i guess by the titile you probably knwo my issue.

ive been the fat kid forever.

and looking at me now - i wouldnt say im "fat" i think im chubby - i always keep in the back of my mind that marilyn monroe was a size 14. and i was too. well now im sorta inbetween a 14 and a 16..

ive always had issues with my body - it drives me crazy. i dont even like shopping for clothes because i end up crying everytime i do.

prom is in 2 weeks. i made my dress. that was a lil depressing too - i made my dress a 16 - just so i could make alterations here and there if i needed to. but its tight - and im wondering if its me - or if its the pattern - like when it depends what size you wear because of who made them. i dunno -

i just dislike my body in alot of ways.
but i love my being. i like who i am. its definately an inner beauty thing. :)
and its not just the fat thing.

like my breasts. i hate them as well. i wish they would go away. and i dont have huge boobs. so it really shouldnt be an issue. but they are.

i guess thats a peek into my issues - and my story.


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